THE UPDATE We met with Dr. Omid Hamid at the Angeles Clinic today, thanks to the introduction of  my childhood friend, Rachel Humphrey, who continues her amazing career at the top levels of Immuno-Oncology research in the world’s leading companies. Dr. Hamid was fully engaged in my case, took time with us, and, though he was clear […]

THE UPDATE Guess that things are pretty much more the same: As I get into narrower-and-narrower sub-groups (i.e. Central Nervous System Relapse after Autologous Stem Cell Transplant and other prior chemotherapies and radiation), there are less “standard protocols” and less relevant and statistically-valid volumes of data to decide what to do next for *me*. All […]

THE UPDATE After getting MRI images of the rest of my spine and brain, and analysis of my spinal fluid, it looks like the current “infiltration” of the Lymphoma into my spine is confined to the lower (Lumbar/Sacral) part. No evidence of spread up the spine or into the brain. No evidence of cancer cells […]

Thanks to all of you reaching out to see what’s going on – I just wanted to post a ‘quickie’ to fill you in…no musings or whatevers, just the facts! Pain and symptoms are more under control with new steroid regimen and start of intra-spinal chemo treatment on Tues. Legs are weak and slow, but […]

THE UPDATE This is one I didn’t think I’d have to write – at least not this soon. But I am reminded again that there is so much we can’t control or know. Yes, it is back. Already. Less than 5 months after what seemed to be a very successful transplant, a long-term cleansing and […]