Category Experience
The Good Week
It is true – I haven’t had much to say. I’m pretty much out of the fog and enjoying my “good week”. I’ve been working, doing actual stuff. Other than getting tired early/easily, feel like a regular person. What does that mean? It’s almost time to start another cycle, of course! We’ll be taking Jordie […]
My Head is Full of Cotton Balls
The first bag drips into me, following a short path straight to my heart. It takes 3 hours to fill my head with cotton balls. The next four bags take four days to create a labyrinthine rubber band inside my body. I can smell and taste the construction. The rubber band stretches from my intestines to my […]
As Good As It Gets (here)
I’m on my last of four 24-hour infusions of my “miracle poison” (this stuff). By it’s nature, a hospital room, however nice, is not a great place to pass a holiday weekend…but, boy, did I have a lot of family and friends making it as good as it could be! Thanks to everyone for helping […]
You May Now Vacate The Premises! (or, how to remove the spots from a Dalmatian…)
First evidence: feeling better == getting better. I have received the results of the full-body PET scan I had Monday showing the difference from before I started chemo (now that 2 R-CHOP cycles are done). Here is an excerpt from the contrast-enhanced images (that show higher metabolic activity of cancer cells vs. normal cells) and […]
Solidarity!
Jordie, Adam and Jason show their support…and some skin! Nice having the team on my side… And before…
Drug Slave
Cycle 2, Day 6: that’s the day that I stop taking Prednisone, (the P in the CHOP-R regimen). Prednisone is a steroid, and, among other things, it makes you a little hyper and boosts appetite. Now that I’m past dealing with the bone pain from the lymphoma (yay!), it’s amazing how obvious the difference is […]
drip, drip, drip…
Putting my power port to good use at the doc’s luxury chemo club. The last 2 days were encouraging – the original pains that led me to the hospital seem to be healing and the chemo pains became more manageable. After this round I should be able to differentiate between symptoms of the disease and […]
When Did The Invaders Sail In?
Had happy hour with my favorite doctor (again) today…the office was packed, but she really doesn’t rush me. That’s a tough job. Today’s chemo feedback: chemo cycle 1 is working well, blood numbers in the right direction, pain subsiding already. I’ve gone without pain pills most of the last 2 days and it is amazing how […]
Latest Diagnosis & Treatment
My Oncologist/Hematologist/Internist, Dr. Meyering has been great – really engaged, spends more time and effort than I’d have expected. Her own experience surviving cancer also helps. Got lucky with her! After yesterday’s sit down, here’s the latest: My initial response to chemo round 1 has been quite good…and without the worst of the side-effects (yet […]
The Post about the Posts
Welcome to my blog. Part self-help, part info-dissemination and at your disposal. Remember, this blog doesn’t mean I don’t want you to call or visit or anything – it’s just here to share “the details” so we can talk about other things, too. I expect it’ll be a roller-coaster ride for the next 4-6 months […]
The Magic Power Port
I had a “Port-a-Cath” installed in my shoulder/chest area on Thurs 7/19 – and it was being used already on Sat. 7/21 for my first round of chemo. Why the “Power Port“? With so many injections and tests over the next 4-6 months, it just is easier, more effective and less risky. No IVs, on […]
What’s Going On Today?
(REPLACED WITH DAILY DIARY PAGE – see link at upper-right)
Cliphoma 