It is true – I haven’t had much to say. I’m pretty much out of the fog and enjoying my “good week”. I’ve been working, doing actual stuff. Other than getting tired early/easily, feel like a regular person. What does that mean? It’s almost time to start another cycle, of course! We’ll be taking Jordie […]
The first bag drips into me, following a short path straight to my heart. It takes 3 hours to fill my head with cotton balls. The next four bags take four days to create a labyrinthine rubber band inside my body. I can smell and taste the construction. The rubber band stretches from my intestines to my […]
I’m on my last of four 24-hour infusions of my “miracle poison” (this stuff). By it’s nature, a hospital room, however nice, is not a great place to pass a holiday weekend…but, boy, did I have a lot of family and friends making it as good as it could be! Thanks to everyone for helping […]
Here I am…waiting to start the drip. Didn’t get the corner room again, so only one window… 11:40am: the Rituxan drip begins. This is the good stuff. In a perfect world, the entire R-EPOCH regimen could be administered in about 4 days and 1 hour. It will probably be closer to 4 days plus 8 […]
First evidence: feeling better == getting better. I have received the results of the full-body PET scan I had Monday showing the difference from before I started chemo (now that 2 R-CHOP cycles are done). Here is an excerpt from the contrast-enhanced images (that show higher metabolic activity of cancer cells vs. normal cells) and […]
Sorry I haven’t posted in a while – I’ve been feeling pretty much “normal” (really good, just get tired/achy by 6pm) and have been keeping busy! Nevertheless, with continued encouragement from Tracey (the Wonder Wife) to get additional medical advice, I have not become complacent. Just because I feel good doesn’t mean I’m cured… So, […]
Tess surprised me and came home from SLO this weekend. We’ve had some fun creating “cancer ice breaker” tee shirts now that my hair is going… And the current hair situation… Other than that, all is going pretty well. Made it through cycle 2 with moderate side effects so far and […]
Jordie, Adam and Jason show their support…and some skin! Nice having the team on my side… And before…
Cycle 2, Day 6: that’s the day that I stop taking Prednisone, (the P in the CHOP-R regimen). Prednisone is a steroid, and, among other things, it makes you a little hyper and boosts appetite. Now that I’m past dealing with the bone pain from the lymphoma (yay!), it’s amazing how obvious the difference is […]
Putting my power port to good use at the doc’s luxury chemo club. The last 2 days were encouraging – the original pains that led me to the hospital seem to be healing and the chemo pains became more manageable. After this round I should be able to differentiate between symptoms of the disease and […]
What’s a good day? Being up-and-around and doing stuff (whatever stuff) while only needing a few tylenol all day. I guess the 21 day cycle wasn’t just a guess – just enough time to get feeling human again so that you can handle another round on Thursday! About Intrathecal (spinal) chemo – we decided to […]
You might have noticed I haven’t had much to post the last few days. Mostly, I’m just waiting for (and kind of dreading) round 2 (starts Thursday) and wondering how I’ll feel each day. In the meantime, it seems like my life has been put on hold. No long term plans…no travel, no consulting gigs […]
Cliphoma 