About This Lymphoma Thingy…

(Why am I creating a blog?)

So, I have this pain in my ribs a few weeks ago – no big deal, probably trying too hard with Jordie in the gym or something.  But, it doesn’t go away and it starts getting worse.  Well, a couple of weeks later, we find out I have Lymphoma.  Sounds scary, but not as bad as it could be once you learn more:

  • What is Lymphoma? It is a cancer that starts in the Lymphatic system (glands, vessels, spleen) with some rogue lymphocytes (a type of white blood cell involved in the immune system) multiplying and pushing out the good guys.  There are over 30 types of lymphoma, and they are VERY different from each other.  I never thought I’d say this, but I have one of the “best” types – meaning it is about the most curable.  If you’ve gotta know, mine is high-grade non-hodgkin diffuse large B-cell lymphoma.
  • How did they figure out I had it? Really, they only suspected it based on some weird stuff in miscellaneous X-rays and CT scans until they were able to cut out a swollen lymph node under my right jaw and send it to the lab where they could see and analyze the actual cells.  Before the rogue mega-node showed up, they were hunting with needles 😦 … without much success.
  • What now? A few more tests for final classification/grading so that the exact treatment can be decided upon.  I had a PET scan this morning that will show all the places the cancer is and will get a “port” put in tomorrow for administration of chemo and/or infusions.  On Monday I’ll start the R-CHOP chemo regimen – the “R” part is pretty new and kinda magical, using bio-engineered monoclonal anti-bodies to specifically target the rogue cells.  As things progress, we’ll decide if any radiation and/or marrow therapy is warranted.
  • The Prognosis? No numbers yet, but let me just say that a very high percentage of people with this type of lymphoma are CURED (not just temporary remission or life-extension).  I don’t have many other “risk factors”.  Once we have all the sub-typing and other tests done, I’ll know more, but things look pretty good.

3 comments

  1. Ben's avatar

    I certainly didn’t know that a PET scan used antimatter to take a picture. I guess I learned something new today.

    Ben

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  2. Errol Ginsberg's avatar
    Errol Ginsberg · · Reply

    Cliff. You are a real inspiration to all of us. I think about you a lot since you told me. You have a big support system behind you and many friends that you can call on. Keep up the spirits and the blog even when the going may get tough over the next few months.

    You are creating a very well written and informative blog that I am sure will help many others when they start to find out about it.

    All the best.

    Errol G.

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  3. Heather Moloian's avatar

    Hi Cliff! First of all, I want to say how proud I am of you, for your empowered attitude about what is happening. I, along with my entire family, will be constantly thinking good thoughts and prayers for all successful phases of your treatment. Secondly, I appreciate you attacking the communications, via your blog in such an immediate and clear, detailed manner. It definitely, helps answer some questions and most importantly, let’s us all know how you are feeling and the progression of your treatment. Bravo to you and the success of your health journey!

    Regards,

    Heather M.

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